Funding the cure for Sialidosis. Rooted in hope.
We raise funds for Sialidosis (Type I & Type II) medical research and give newly diagnosed families the clear, compassionate information they cannot easily find anywhere else.
Every dollar matters
See exactly where your gift goes
2026 Research Fund for Sialidosis
Powering NEU1 gene & enzyme replacement studies through December 2026
raised of $900,000 goal
200 Individual donors
Dec 31, 2026 Campaign close
100% Goes directly to mission programs
— The Tree For Cure Approach
Three roots, one mission
Every program we run grows from the same trunk: getting families to a cure faster, and making sure no one walks the path alone.
Research Funding
We empower rare disease communities by funding the final mile of approved research, helping patients and organizations turn laboratory breakthroughs into life-changing gene therapies.
Support
Make the Gene Therapy Research availability listed for all rare genetic disorders (TBD)
Education
Raise awareness of rare genetic disorders by promoting education on gene therapies and gene editing, inspiring the next generation to advance research, innovation, and equitable access to life-changing treatments.
Research we're funding right now
NEU1 Variant Mapping Initiative
Cataloguing NEU1 mutations across confirmed cases to better predict disease severity and guide genetic counseling.
Enzyme Replacement Pilot
An early-phase pilot exploring neuraminidase enzyme replacement approaches in partnership with two university labs.
Sialidosis Progression Registry Study
A longitudinal study tracking symptom progression across Type I and Type II to strengthen future clinical trial design.
Families who have walked this path
Your gift funds the next breakthrough.
Every dollar brings researchers closer to answers and gives families the resources they need today.